DNA data sharing: research participants' perspectives
نویسندگان
چکیده
منابع مشابه
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
BACKGROUND Technological advancements are rapidly propelling the field of genome research forward, while lawmakers attempt to keep apace with the risks these advances bear. Balancing normative concerns of maximizing data utility and protecting human subjects, whose privacy is at risk due to the identifiability of DNA data, are central to policy decisions. Research on genome research participant...
متن کاملPaying research subjects: participants' perspectives.
OBJECTIVE To explore the opinions of unpaid healthy volunteers on the payment of research subjects. DESIGN Prospective cohort. SETTING Southern Alberta, Canada. PARTICIPANTS Medically eligible persons responding to recruiting advertisements for a randomised vaccine trial were invited to take part in a study of informed consent at the point at which they formally consented or refused trial...
متن کاملsharing research findings with research participants and communities
in occupational and environmental health research, individual, group and community research participants have a unique and vested interest in the research findings. the ethical principles of autonomy, non-maleficence and beneficence are helpful in considering the ethical issues in the disclosure of research findings in occupational and environmental health research. researchers need to include ...
متن کاملSharing research findings with research participants and communities.
In occupational and environmental health research, individual, group and community research participants have a unique and vested interest in the research findings. The ethical principles of autonomy, non-maleficence and beneficence are helpful in considering the ethical issues in the disclosure of research findings in occupational and environmental health research. Researchers need to include ...
متن کاملInvestigation of Sharing and Reuse of Research Data among Researchers
Purpose: Sharing research data leads to the reusing that data. The purpose is to describe the status of sharing and reusing research data amongst researchers. This examines the attitude, experience and barriers in reusing research data. Methodology: Applied quantitative survey method was used. Population was 154 participants all faculty members of Azarbaijan Shahid Madani University. Instrum...
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ژورنال
عنوان ژورنال: Genetics in Medicine
سال: 2008
ISSN: 1098-3600,1530-0366
DOI: 10.1097/gim.0b013e31815f1e00